WHO Symposium on Meaningful Engagement, Lavanya Vijayasingham
The Lions Write Journal: Journal of first-person voice on lived, first-hand experience and tacit knowledge in managing chronic health conditions
Publication
20 Nov 2025
International League of Dermatological Societies
15 Nov 2024
Published in Dermatology in February 2024 by Dorra Bouzzai and colleagues, this article outlines the innovative methodology of the Global Hidradenitis Suppurativa Atlas (GHiSA) for estimating the global prevalence of hidradenitis suppurativa (HS). Utilizing a validated screening questionnaire followed by physician validation, the approach addresses limitations of prior studies by standardizing data collection and ensuring diagnostic accuracy. Ongoing studies across 58 countries aim to combine local prevalence data into a global estimate using proportional meta-analysis. This standardized methodology enables robust international comparisons, overcoming past heterogeneity in HS prevalence research.