India Advocacy Agenda of People Living with NCDs

HRIDAY

12 Dec 2019

India Advocacy Agenda of People Living with NCDs

The India Advocacy Agenda of People Living with NCDs has been developed as a result of the Community Conversations and Regional Consultations, involving voices of people with lived experiences, conducted between 2017-2018. The development of this Advocacy Agenda was supported by the Healthy India Alliance, which prioritises 'putting people first' in the NCD response. The Advocacy Agenda is guided by the mandate of Universal Health Coverage to 'Leave no One Behind' and has received inputs from PLWNCDs from all the four regions of the country. The Advocacy Agenda calls for the highest level of political support to put the needs of PLWNCDs at the center of NCD policy and practice in India.
In 2017, the NCD Alliance partnered with the Healthy India Alliance to promote meaningful involvement of PLWNCDs in the NCD response through a set of in-country activities. In 2017, a situational analysis/needs assessment with PLWNCDs, was conducted in India. Four Community Conversations (CCs) were conducted in collaboration with HIA and non-HIA partners. A total of 49 respondents were reached through these CCs. The CCs helped in identifying the needs, challenges and priorities of PLWNCDs. The outcomes of the CCs fed into the development of the Global Advocacy Agenda of PLWNCDs, led by the NCD Alliance. HIA representatives also participated in the OVOV workshop held in Geneva by NCD Alliance to finalise the Global Advocacy Agenda.
In 2018, a Working Group on meaningful involvement of PLWNCDs and palliative care, was formed within HIA, to conduct four Regional Consultations (in North, South, East and West regions) with PLWNCDs and CSOs working on issues related to people centred care. The inputs received during these Consultations were woven together, with the outcomes of the CCs, to feed into the development of this India Advocacy Agenda of People Living with NCDs. Through the Consultations, 82 PLWNCDs and 43 CSOs (working on issues related to people centred care) were involved.
This Advocacy Agenda is built on four key pillars:
1. Human Rights and Social Justice
2. Prevention
3. Treatment, Care and Support
4. Meaningful involvement