WHO Civil Society Working Group on NCDs Consensus Statement at the Multistakeholder Hearing for the Fourth UN High-level Meeting on Noncommunicable Diseases and Mental Health, 2 May 2025
02 May 2025
International Society of Nephrology
10 Mar 2025
Rare kidney diseases constitute a significant public health challenge but have attracted limited research investment. The evidence about the socioeconomic burden of rare kidney diseases has not been systematically examined. Such evidence is critical for generating the advocacy and awareness necessary to impel scientific and policy investment in targeted care in health systems worldwide. We aimed to evaluate the socioeconomic burden borne by patients with rare kidney diseases, their families, and caregivers, and the related psychosocial impact.