23 Resources


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Systematic Scoping Review of Socioeconomic Burden and Associated Psychosocial Impact in Patients With Rare Kidney Diseases and Their Caregivers
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International Society of Nephrology

Systematic Scoping Review of Socioeconomic Burden and Associated Psychosocial Impact in Patients With Rare Kidney Diseases and Their Caregivers

Article

10 Mar 2025

Rare kidney diseases constitute a significant public health challenge but have attracted limited research investment. The evidence about the socioeconomic burden of rare kidney diseases has not been systematically examined. Such evidence is critical for generating the advocacy and awareness necessary to impel scientific and policy investment in targeted care in health systems worldwide. We aimed t...

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ISN Manifesto: Kidney health matters driving global action with evidence and impact
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International Society of Nephrology

ISN Manifesto: Kidney health matters driving global action with evidence and impact

Guide

10 Feb 2025

The International Society of Nephrology (ISN) presents this document ahead of the Fourth UN High-Level Meeting in September 2025. The document advances key advocacy messages and policy recommendations specifically directed at UN Member States and policymakers at national, regional and local levels.

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Scoping Review of Economic Analyses of Rare Kidney Diseases
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International Society of Nephrology

Scoping Review of Economic Analyses of Rare Kidney Diseases

Article

10 Dec 2024

Rare kidney diseases (RKDs) place a substantial economic burden on patients and health systems, the extent of which is unknown and may be systematically underestimated by health economic techniques. We aimed to investigate the economic burden and cost-effectiveness evidence base for RKDs.

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ISN Research Skills Toolkit
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International Society of Nephrology

ISN Research Skills Toolkit

Briefs & Fact Sheets

23 Jul 2024

This toolkit is a comprehensive compilation of research resources, developed by the ISN. It is a joint initiative of the ISN Academy, the Young Nephrologists Committee (YNC) and the Clinical Research Program Committee (CRP), to support younger generations of nephrologists (and anyone else interested) to contribute to advancing kidney health worldwide.

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Rare Kindey Disease Toolkit
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International Society of Nephrology

Rare Kindey Disease Toolkit

Briefs & Fact Sheets

23 Jul 2024

This toolkit aims to raise the profile of rare kidney diseases (RKDs), offer disease-specific tools, and understand and highlight the burden, gaps and unmet needs to fill.

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 Toolkit on creating a Young Nephrologists Committee
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International Society of Nephrology

Toolkit on creating a Young Nephrologists Committee

Briefs & Fact Sheets

23 Jul 2024

The Young Nephrologists Committee of the ISN has developed this toolkit on how to create a young nephrologists committee or group in your national or regional society.

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Global Kidney Health Atlas
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International Society of Nephrology

Global Kidney Health Atlas

Database

19 Jul 2024

Kidney disease is a significant worldwide public health problem. Acute kidney injury (AKI) and chronic kidney disease (CKD) are linked to high health care costs, poor quality of life, and serious adverse health outcomes. Despite this burden, kidney disease is often not included in major chronic disease control strategies, presenting an obstacle when engaging with governments to address kidney d...

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Perspectives on Early Detection of Chronic Kidney Disease: Thes facts, the Questions, and a Proposed Framework for 2023 and Beyond
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International Society of Nephrology

Perspectives on Early Detection of Chronic Kidney Disease: Thes facts, the Questions, and a Proposed Framework for 2023 and Beyond

Article

18 Jul 2024

Responsible use of limited healthcare and community resources to improve the kidney health of communities is critical. Ensuring the optimal allocation of these resources requires a multifaceted approach that can address the complex needs of the population effectively. To this end, we encourage the thoughtful application of a comprehensive framework designed to facilitate meaningful change. This fr...

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World Kidney Day 2024 scientific editorial – Mind the gap in kidney care: translating what we know into what we do.
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International Society of Nephrology

World Kidney Day 2024 scientific editorial – Mind the gap in kidney care: translating what we know into what we do.

Briefs & Fact Sheets

18 Jul 2024

Historically, it takes an average of 17 years to move new treatments from clinical evidence to daily practice. Given the highly effective treatments now available to prevent or delay kidney disease onset and progression, this is far too long. The time is now to narrow the gap between what we know and what we do. Clear guidelines exist for the prevention and management of common risk factors for ki...

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Chronic kidney disease and the global public health agenda: an international consensus
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International Society of Nephrology

Chronic kidney disease and the global public health agenda: an international consensus

Article

18 Jul 2024

Early detection is crucial to prevent kidney disease and its complications, but public awareness is low. Increasing knowledge and implementing early detection measures are public health priorities. Kidney disease is becoming more prevalent globally, now ranking as the seventh leading cause of death. Factors such as demographic changes, the obesity epidemic, and climate change will likely worsen th...

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CKD Early Identification & Intervention Toolkit
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International Society of Nephrology

CKD Early Identification & Intervention Toolkit

Briefs & Fact Sheets

23 May 2024

This toolkit contains a series of tools for CKD early identification and intervention aimed at kidney health professionals, primary care physicians and nurses working in primary care settings.

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ISN-ACT Clinical Trial Toolkit
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International Society of Nephrology

ISN-ACT Clinical Trial Toolkit

Briefs & Fact Sheets

23 Apr 2024

This toolkit is aimed at nephrologists and researchers in nephrology from all parts of the globe – regardless of their level of clinical trial experience and their local resources. It aims to provide a guidance for anyone wishing to start a clinical trial or to participate as a trial site.

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