Knowledge Action Portal on NCDs

6 Resources
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Thalassaemia International Federation (TIF)

TIF AI KNOWLEDGE BOT: Your Go-To Source for Thalassaemia Information

21 Jan 2025

In the world of healthcare, staying well-informed is crucial. This is why the Thalassaemia International Federation (TIF) has recently launched the TIF AI Knowledge Bot, a pioneering tool that integrates the power of AI technology with TIF’s extensive and reputable resources on thalassaemia. Its purpose is to make access to accurate information about this genetic condition quicker and easier tha...

Digital health and innovation

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<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--pin.html.twig ✅ field--node--title.html.twig ▪️ field--node--pin.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> Guidelines for the Management of Non-Transfusion-Dependent β-Thalassaemia (NTDT) <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

Thalassaemia International Federation

Guidelines for the Management of Non-Transfusion-Dependent β-Thalassaemia (NTDT)

Publication

07 Apr 2024

The 3rd edition of the Thalassaemia International Federation's Guidelines for the Management of Non-Transfusion-Dependent β-Thalassaemia (NTDT) is available. This updated edition is a valuable resource for enhancing the care of individuals with NTDT, a condition that has been underestimated regarding its importance and clinical significance for many years. &nbsp; The 2023 version of the doc...

PublicationHealth Literacy Development

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<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--pin.html.twig ✅ field--node--title.html.twig ▪️ field--node--pin.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> Nutrition in Thalassaemia and Pyruvate Kinase Deficiency (PKD) <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

Thalassaemia International Federation

Nutrition in Thalassaemia and Pyruvate Kinase Deficiency (PKD)

Publication

07 Apr 2024

Nutrition holds a significant position in the lives of individuals afflicted with thalassaemia and other hereditary anaemias. As part of its enduring commitment to generating guidelines and educational materials for healthcare professionals, TIF is honored to unveil its most recent publication, the&nbsp;‘Nutrition Guidelines in Thalassemia &amp; PKD‘, explicitly crafted to cater to the dist...

PublicationNutrition and food safety

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Thalassaemia International Federation

Guidelines for the Management of α-Thalassaemia

Publication

03 Mar 2024

The 'Guidelines for the Management of α-Thalassaemia,' provided by TIF, serve as an essential tool for healthcare professionals, researchers, and others interested in the nuances of α-Thalassaemia management. α-Thalassaemia, as one of the more complex genetic haemoglobinopathies, has frequently escaped early diagnosis, leaving many patients to face serious complications before they even seek...

PublicationHealth Literacy Development

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<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--pin.html.twig ✅ field--node--title.html.twig ▪️ field--node--pin.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> TIF e-Academy <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

Thalassaemia International Federation

TIF e-Academy

Database

01 Mar 2024

TIF e-Academy is a platform that offers free of charge online, interactive courses which aim to increase patients, parents, and healthcare professionals' knowledge on thalassaemia, and sickle cell disease (SCD). All courses have been developed and reviewed by renowned international medical experts and patient leaders. Content is regularly updated. &nbsp; The following courses are available for...

DatabaseHealth Literacy DevelopmentMeaningful Engagement of People with Lived ExperiencesHealth promotion

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<!-- THEME DEBUG --> <!-- THEME HOOK: 'field' --> <!-- FILE NAME SUGGESTIONS: ▪️ field--node--title--pin.html.twig ✅ field--node--title.html.twig ▪️ field--node--pin.html.twig ▪️ field--title.html.twig ▪️ field--string.html.twig ▪️ field.html.twig --> <!-- 💡 BEGIN CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' --> Thalassaemia International Federation LIbrary eXtended (TIFLIX) <!-- END CUSTOM TEMPLATE OUTPUT from 'themes/custom/whokap/templates/field/field--node--title.html.twig' -->

Thalassaemia International Federation

Thalassaemia International Federation LIbrary eXtended (TIFLIX)

Database

01 Mar 2024

Thalassaemia International Federation LIbrary eXtended (TIFLIX) is an extensive digital repository of educational video recordings that relate to the prevention and management of Thalassaemia, Sickle Cell Disease and other rare anaemias. Topic discussions are led by renowned international medical scientific experts and leading patient advocates.

DatabaseHealth Literacy DevelopmentMeaningful Engagement of People with Lived ExperiencesMultistakeholder CollaborationHealth promotion

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