Guidelines for the Management of α-Thalassaemia

Thalassaemia International Federation

03 Mar 2024

 Guidelines for the Management of α-Thalassaemia

The 'Guidelines for the Management of α-Thalassaemia,' provided by TIF, serve as an essential tool for healthcare professionals, researchers, and others interested in the nuances of α-Thalassaemia management.

α-Thalassaemia, as one of the more complex genetic haemoglobinopathies, has frequently escaped early diagnosis, leaving many patients to face serious complications before they even seek treatment. This delay in diagnosis not only exacerbates patient outcomes but also hinders our understanding of the disease's broader impact on individuals' lives.

The release of this educational resource heralds a crucial shift towards improving patient care and enhancing understanding of how α-Thalassaemia affects patients' quality of life and social inclusion. The guidelines were crafted by a distinguished global team of specialists and encapsulate everything from the genetic underpinnings and prevalence of α-Thalassaemia to clinical features, diagnosis strategies, treatments, ongoing care practices, and innovative therapies.

TIF envisions these guidelines as a strategic asset for health experts, researchers, and policymakers in the realm of blood disorders. It is hoped that they will foster enhancements in everyday clinical operations informed by the latest scientific developments.

For full access to the Guidelines, visit: https://thalassaemia.org.cy/publications/tif-publications/guidelines-for-the-management-of-%ce%b1-thalassaemia/